Children and Youth with Special Health Care Needs

Toolkit: National Standards for Children and Youth with Special Health Care Needs

The National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN. Nearly 20 percent of US children under age 18 have special health care needs. This toolkit provides a portal to critical tools, fact sheets, and other resources that states can […]

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  • How State Medicaid and Title V Partnerships Improve Care for Children with Special Health Care Needs in Medicaid Managed Care

    How State Medicaid and Title V Partnerships Improve Care for Children with Special Health Care Needs in Medicaid Managed Care

    States are increasingly utilizing Medicaid managed care (MMC) to serve children and youth with special health care needs (CYSHCN), who often require a complex array of services. Many states are finding that forging partnerships between their MMC systems and Title V CYSHCN programs improves care coordination, transitions from pediatric to adult care systems, quality of […]

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  • State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs

    State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs

    Medical homes are critical components of comprehensive care systems for children and youth with special health needs (CYSHCN). They can reduce costs and improve outcomes and care experiences for CYSHCN and their families. This new report, State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs, examines effective strategies used […]

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  • State Health Policy Blog
    How States Can Improve Access to Care for Children Under the Medicaid Managed Care Rule

    How States Can Improve Access to Care for Children Under the Medicaid Managed Care Rule

    Next month, states face new federal requirements for establishing and maintaining Medicaid managed care provider networks. As they work to comply with these new rules, states have an opportunity to strengthen access to care for children and youth with special health care needs (CYSHCN). Medicaid and requirements, which address how enrollees access care and the […]

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  • Webinars

    Webinar: Meaningful Family Engagement, from Clinical Care to Health Policy

    1 p.m. (EST) Wednesday, June 6 Join the Lucile Packard Foundation for Children’s Health for a lively discussion about the article, Families of Children With Medical Complexity: A View From the Front Lines. The lead author and experts in the field will review the article’s key content and share ways to strengthen family engagement. It […]

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  • Publications
    How Six States Use Medicaid Managed Care to Serve Children with Special Health Care Needs

    How Six States Use Medicaid Managed Care to Serve Children with Special Health Care Needs

    Medicaid managed care provides a unique opportunity for states to strengthen the structure and delivery of care for children and youth with special health care needs (CYSHCN). The National Academy for State Health Policy (NASHP), studied how six states (Arizona, Colorado, Minnesota, Ohio, Texas, and Virginia) designed their managed care systems to serve CYSHCN and […]

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  • State Health Policy Blog
    States Drive Innovations in Quality Measurement and Improvement for Children with Special Health Care Needs

    States Drive Innovations in Quality Measurement and Improvement for Children with Special Health Care Needs

    Children and youth with special health care needs (CYSHCN) are a diverse population whose health care needs and costs often exceed those of most children. Improving care for this population is critical, yet challenging, due to the complexity of conditions of some children, and the multitude of systems (e.g., health, education, social services) and supports […]

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  • State Health Policy Blog
    Lessons from Project LAUNCH: Promoting Healthy Child Development through Behavioral Health Integration and Mental Health Consultation Where Children Live, Learn, and Grow

    Lessons from Project LAUNCH: Promoting Healthy Child Development through Behavioral Health Integration and Mental Health Consultation Where Children Live, Learn, and Grow

    The first few years of life are critical to a child’s development, setting the foundation for success in school and overall health and well-being later in life. Recent research proves that providing early, skilled behavioral and mental health interventions in venues where young children and their families live and play is highly effective at improving […]

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  • Publications
    States Work to Improve Care for Children with Special Health Needs with Quality Measurement

    States Work to Improve Care for Children with Special Health Needs with Quality Measurement

    Improving the quality of care that children and youth with special health care needs (CYSHCN) receive is a growing priority for state Medicaid programs. However, many quality improvement efforts are in their infancy as states work to overcome the challenges of measuring and assessing care quality for this vulnerable population. NASHP, with support from the […]

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  • State Health Policy Blog
    Success Spurs Growth of Medicaid Managed Care for Children with Special Health Care Needs

    Success Spurs Growth of Medicaid Managed Care for Children with Special Health Care Needs

    Two decades ago, the majority of state Medicaid programs that served children and youth with special health care needs (CYSHCN) relied on a traditional, fee-for-service model to pay for the complex mix of health care services that this group of children often need. But as states became more adept at designing new health care delivery […]

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